Steven McCoy’s story inspires millions as he breaks new ground in journalism. Diagnosed with Usher syndrome, he became the world’s first Black deaf-blind journalist. He uses his platform to promote accessibility and advocate for change within the entertainment industry and beyond.
Overcoming Challenges as a Deaf-Blind Journalist
Steven’s journey began with hearing aids at age five, initially attributed to an ear infection. It wasn’t until 2019, at 30, that he was diagnosed with Usher syndrome, a condition that causes hearing and vision loss.
“The challenges were there a lot longer, but I just wasn’t aware,” Steven recalls. Losing his eyesight added a layer of complexity to his life, but he persevered.
Learning to adjust was difficult, especially after years of independence. “It became a challenge to ask for help, but through faith, research, and confidence, I maintained my independence,” Steven shared.
Finding Strength in Community Support
Steven leaned on his family, friends, and the broader visually impaired community for support. He connected with groups like the New Jersey Commission for the Blind and rehabilitation councils, learning to advocate for himself.
“Sometimes, as blind people, we feel there’s no light at the end of the tunnel,” he said. “But those around us grieve too. We must learn what works for us.” These connections encouraged him to embrace his condition and support others facing similar struggles.
Advocating for Accessibility and Affordable Solutions
Steven’s advocacy extends beyond his journalism. He works with organizations like the Foundation Fighting Blindness and Eyes Like Mine Inc. He has met with legislators to address issues like the affordability of hearing aids.
“Last year, I spoke at the Senate office,” Steven explained. “Thanks to those conversations, the Biden-Harris administration made hearing aids affordable at retailers like Walgreens.” His dedication has impacted policies that improve lives for many in the disabled community.
A Trailblazer in Entertainment and Representation
Steven continues to challenge barriers in entertainment while raising awareness about accessibility. He hosts events, travels on his “Sessions with Steven” tour, and participates in projects highlighting disabled communities.
In addition to being a journalist, Steven serves as the Board Director for the Usher Syndrome Coalition and will represent the New Jersey State Rehabilitation Council. His voice remains a beacon for others navigating similar paths.
Building a Legacy of Empowerment
Steven’s achievements go beyond personal success. By advocating for change and empowering others, he leaves an enduring legacy. He hopes his journey inspires others to speak up and embrace their challenges.
“Confidence to advocate for yourself is key,” Steven said. “You’re not an inconvenience to others. Prioritize being convenient to yourself.”
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